Participant and Public Involvement in the UK
Participant and Public Involvement (PPI) has been central to Homeside throughout the study
On Friday 1st May 2020, the UK PPI group met for the third time, meeting remotely due to COVID-19 restrictions. The UK group links to Homeside’s international PPI group, which has representatives from all 5 countries. The individuals in the group have been affected by dementia within their personal and professional lives, and have informed the design and implementation of our study from their perspectives.
The primary purpose of this group is to ensure the project is meaningful and useful to people with dementia and their caregivers. In our most recent meeting, the group spoke about switching to online delivery of the study and how we can continue to recruit participants into the study during this difficult time.
Overall, the group members felt that moving online is important in order to continue to reach participants, although there were some concerns that ‘nothing beats’ face-to-face contact. The members also felt they could play a role in helping with recruitment, and volunteered to get involved with an updated recruitment video – so watch this space for a new video soon!